The FDA's Advisory Committees Are Failing Rare Disease Patients
The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments from patients who are running out of time. That leadership is now gone. Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired.
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The FDA's Advisory Committees Are Failing Rare Disease Patients Greg Rohrbough | 9:36 PM on June 18, 2026 AP Photo/Jose Luis Magana, File The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments from patients who are running out of time. That leadership is now gone. Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired. Advertisement googletag.cmd.push(function () { googletag.display("div-gpt-300x250_3"); //googletag.pubads().refresh([gptAdSlot["div-gpt-300x250_3"]]) }); But what remains is an agency in chaos that still isn’t serving the public.I have spent my career fighting for limited government and individual liberty, from lobbying for human rights to working at the National Right to Work Committee.
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